Still here! They're being nice

Hi,

I'm still here. Didn't go home on Thursday like I thought because I'm happy to report the doctors figured out the basics of what's going on. I started a new medicine and though my blood pressure is still low (95/46) I reported an improvement in one symptom which evidently turned out to be important.

We are all excited about the idea of going to the ARU (Acute Rehabilitation Unit) here at Cedars. It's for patients to go to Physical Therapy and Occupational Therapy for 3 hours per DAY! They jokingly call it "Physical Therapy Boot Camp". Plus my Lupus doctor says he can do a Cortisol Challenge test if I'm there but if I go home, then he won't be able to do that. He said if my body passes the Cortisol Challenge test, then he can lower my Prednisone (a steroid) by half but only if I'm in the hospital.

So, I've been evaluated by the ARU doctors, PT, OT and ST and they all agree that I meet the admission criteria (evidently there are certain criteria for admission, certain amount of disability, etc....) but now we need my Insurance Company to approve it! I pray that God is in charge and His Will is what will be done. But I really want to go, my doctors want me to go and the ARU doctors want me to go. :)

May I confess something? I am angry. If people ask about me, please just avoid the question. There are too many incidences of people making assumptions, judgements and even MAKING DECISIONS ABOUT ME...... AND....... MAKING DECISIONS ON MY BEHALF...... that are discriminatory and offensive.

I will not go into details, just to say, I am experiencing some real problems with people's opnions and do not want to be talked about anymore. If you got an invite to the BLOG it's because you're on my approved list, please don't share it with people, if asked, just refer people to my e-mail or something? I could sure use a hedge of protection and Phil is doing an awesome job of helping sort this out.