WHAT THE HECK IS..........?

Lambert Eaton Myasthenia Syndrome?

also known as:

Eaton Lambert Myasthenia Syndrome?



OK, good news, not so good news. They figured out this additional problem, which means they can now raise the treatment! The treatments for Lupus and these problems are very close! So, now they can give me more treatments even when the blood work is fine, they can say, look, the symtpoms speak loudly enough on their own. Oh, plus I'm having a lupus flair right now, so they increased the Prednisone.



Some of the things they really want me to do is to KEEP MOVING, KEEP DOING, and DON'T GIVE IN! So, if I get too weary, I rest, but other than that.......keep doing!



Bad news is that it is one of the Paraneoplastic Syndromes which means there is a 50-70% chance I have cancer, or will develop cancer within the next 3 years. I really don't feel like I have cancer, I'm not afraid of this, but I'm glad they're going to be watching VERY closely.



LEMS (also known by it's alias ELMS) is also a rare form of Muscular Dystrophy in addition to being another auto-immune disease. http://www.nlm.nih.gov/MEDLINEPLUS/ency/article/000710.htm



OK, now...... no DRAMA, OK? I want each and everyone to know.....I'm good! I am not afraid, I'm happy, I'm peaceful, and I laugh in the face of these preposterous testings of my faith! I have hope, I have a skilled team of medical people, I have God and if HE is for me....who can be against me? Or like my friend said: you must be a threat because the Devil is trying to take you OUT. LOL



ALSO, the government moved SO fast and approved my SSDI in record time (4 months). So, Phil and Kassia are getting their real estate licenses to take the business, the business will cover Kassia's college expenses (I pray) and I can coordinate and advise!