This might be a little confusing today, there are several separate, but related, things on my mind.
1. Before going to doctor appointments, I prepare a list of questions, statements about my areas of concern, refill requests......but I didn't do that this week. I was quiet. Real quiet. Didn't pray much, just quiet.
Now, I pray all the time, all day, all night (yes I will pray for anyone that asks) and I was just tired. Last night I asked God to forgive me for the lapse this week, that I haven't been studying and haven't been praying as much, and to please help me get back on track.
Today, I got Grace that I didn't earn.
Phil was asking me what I was going to tell the doctor and what I'd be asking (he knows I prepare) and I said "eh, I dunno" and he was a little suprised. I was so quiet. Then we got into the doctor's office and I got in a bit of a silly mood.....so I used the paper cover of the exam table and drew a stick figure of me on it, complete with hair, glasses and t-shirt and capris. Then I drew a big arrow to the most painful spot and wrote "Ouch! Fix it?" Then I wrote a bubble and in it I wrote my medicine changes since the last visit. In another bubble I wrote what the other doctor's were doing since my last visit, in another bubble I wrote my refill requests, you get the idea.
Made a big smiley face on my picture face and when Dr. Rheumatologist walked in, I said "Hi! Here is your exam findings on the table for you. I said, I thought I'd be silly with you a little today because all day you work with patients in Chronic Pain, and are Chronically Fatigued and they're sick and I was thinking that you help them to feel better ..........and who helps you to cheer up?" and he says "It doesn't happen often, I want to take a closer look at this drawing." So he did and you know what? It really communicated VERY well to him what was going on. And it made him grin.
I have always been under the impression that the docs were giving me the right medicines, just not enough and not for long enough. Today, he fixed that! I'm back on my old chemotherapy pills (not as big a deal as it sounds?) AND I get to keep the other 2 lupus medicines too!
2. Here's the grace I didn't expect: So, while I was feeling a little guilty for not being as immersed in God this past week.....God was preparing help for me.
Through a series of circumstances.....3 different women from church ended up bringing dinner tonight! One is frozen, one we ate today and one will be for tomorrow! What a blessing that is because I took my first dose again of the chemo pills today, and I forgot how lightheaded and hot and tired and nauseated it makes me feel.
So, for the next 3 days I dont' have to worry at all about what's for dinner! I'm also impressed that God answered a prayer I didn't realize I had asked.....the question in my mind popped up over a week ago.....'do I need more than one or two medicines to get this immune system under control to stop the damage'? Today, that question was answered. I'm so at peace, and I'm amazed.
Thanks God, you amaze me. Thanks to all my friends too, that heeded His voice and accepted the call to mobilize into action.
LOVE YOU!
TLC
Tuesday, February 3, 2009
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2 comments:
So glad to hear things are looking up :)
I like drawing on the paper tablecloths at Macaroni Grill.
God certainly has given you the ability to defend your wellness plan and stand up to those doctors who would try to hinder that plan. Good for you!
Now, drawing on the exam paper...what a way to brighten a doctor's day. You can bet he will love seeing you in the future and will be happy to listen to you. You are so clever.
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