Hi!
OK, I love this Enbrel stuff! It is helping in ways that I didn't expect! A lot of the neuro symptoms are showing amazing improvement, the joint pain and swelling are much more manageable, I'm walking more, standing more, doing more, and my spine quit hurting!
Instead of walking with a cane about .6 to 1.8 mph on a flat treadmill, I am up to a walking speed of 2.0 to 2.6 mph for up to 10 minutes. I can go to church and sit through church! I still am very much in need of more recovery but I am happy for what I've got.
We started weaning off the Prednisone and I'm looking forward to being able to lose the medication weight! Sad news is that when we lower the dose, the symptoms worsen for like 3 weeks or so....
My medications cost over $2500/month, my insurance covers a lot but not all. I endeavor to make those medications pay off!
Had my final consult with UCLA and they were nice! What? Nice? Yes, they were nice because they figured out what was going on, and they were all excited about it because it was rare. LOL.
I'm looking at Bible College but can't afford it, so I'm thinking of auditing a class to see if I can even keep up. The good news is that the audit is very cheap and I can do it on one of their online classes.
So, who wants to go on a walk with me????
Love,
T
Thursday, June 11, 2009
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